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In Need Of Oxygen Concentrator
A MyCOPDTeam Member asked a question 💭

Hello all,

i am in need of a portable oxygen and my insurence have turned it down.
would anyone know if the Shriners help with items like that and how would i get
in touch with them... thanks

posted June 11, 2015
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A MyCOPDTeam Member

I don't understand what you mean by "stats too high" I thought Medicare paid 80% of any medical. What is your aversion to liquid oxygen, it's the purest of oxygen there is, and much better for your lungs. I have both, I use my concentrator during the day, because the unit is puts out a bunch of heat in my bedroom, and I use the liquid at night, so I can sleep. I have 110lb. tank of liquid, and I get a refill once a week, but I am on 5-6lpm, oxygen flow. So I use a lot. Good luck with Med4Home, that's where I have my meds, which is all thru my nebulizer, I have Brovana, Atrovent, Pulmocart, it's much cheaper thru the nebulizer, than the inhalers. Like sprivia, Symbacort, and some others. I hope my information has helped you, please keep in touch, ok? Thank you.

posted June 13, 2015 (edited)
A MyCOPDTeam Member

to ccroach: yes I do swear by the liquid oxygen, it's the purest of pure, but I also have a concentrator, which I use during the day because the unit puts out a lot of heat, I have the larger unit, which goes up to 10lpm. I use the liquid during the night so I can sleep better, on both units, I have about 50+ oxygen cords that will take me all over my house, thankfully my house is small, a little over a 1000 square feet, and I also can go outside to the back porch or the front porch, with no problem, I am hands free and can do almost everything I need to do, cook, wash clothes, wash dishes (no dish washer ), bathe, work on the computer, etc. I have had that test before, and my oxygen levels went way below 80%, scared the @#^*#@%^& out of me, don't want to be put though that again, was way too hard on my heart, and body. Who ever thought that up should be shot, or better yet, cut their oxygen off from them, and see how it feels, you don't mess with someones breathing, I don't care what's it's for, too dangerous. Hope this has been helpful for some.

posted June 16, 2015
A MyCOPDTeam Member

This is for Pam H and anyone else who has made children comet on us, or adults stare. I am not on oxygen, but my husband was and we handled it by explaining his condition to the child. The stares were ignored. Usually, the child's parent was only too happy to have us stop and explain.

posted June 16, 2015
A MyCOPDTeam Member

Without liquid oxygen I would be home bound. I have been told that Apria and Lincare will stop offering LOX, but a date has not been issued. The competitive bidding under Medicare is really making major changes with regard to oxygen related products.

I get a refill once a month and feel lucky getting that.

posted June 15, 2015
A MyCOPDTeam Member

The liquid oxygen tank I have holds 110 lbs. of oxygen, and I have a Helios Marathon portable liquid I fill from my big tank, and as I said, it will usually last me about 4-5 hours, depending on the setting, continuous, or on demand, I use the continuous when I am walking around, and then switch to on demand if I'm just sitting, works for me, and it beats carrying around those little cylinder looking tanks. About the meds, I take Brovana, Pulmocort, two times daily, Atovent,four times a day, or every four hours, which is the same as Ipratropium Bromide, and the only Albuterol I take is Ventolin Inhaler, and since I have been on the Atrovent, I don't use my Ventolin inhaler nearly as much as I used to. I have the Albuterol for my Nebulizer, but only if I need for bad days of breathing. The Pulmocart takes the place of Symbicort, and the Brovana takes the place for the Sprivia. I think. I am on .05 mg. of Prednesone as a daily dose for preventive maintenance, and since I have been on that, I don't have the flareups of Bronchitis nearly as much as I used to. Which was about every 2 weeks. I am also on Home Health PT, 2X weekly, and that helps a lot, once I was taught the proper way to do my breathing, I have also done much better. I hope all of this has helped some, I'm certainly glad I found this support group, it allows us to interact with others that has the same problems, while one medication may not be for you, it might help someone else. If I can be of any help, just let me know, ok?

posted June 14, 2015 (edited)

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