I'm really sorry for your loss, and can't imagine anything worse or more devastating than losing a child. And I'm sure that has made dealing with the depression that a chronic illness can bring on much harder.

One of the things many of us do that help when we do see a doc is to write down a list of questions you would like answered or topics you want to discuss. Set your priorities so even if the visit is cut short you can get the most important ones answered. If docs don't give you much information, it's usually because they assume that you know what they know. Silly, I know, but that's actually what some research has shown. So you need to let the doc know what you want to know by asking questions. Here are a couple to get you started:
What's my diagnosis and what in my test results led you to that conclusion?
What medications are you prescribing for me and what is each one supposed to do?
I did a breathing test today; can you explain the results to me and give me a copy of them please? (Always get copies of test results; they're yours!)
What can I do to help myself?

There are lots of others, but this should help you make your own list.

it seem like they dont know much of what they are suppose to know and just tell you to come back in a month,give you another breathing test and start all over again so I do alot of checking myself opn different sights I am tired of getting the run around how about u

I agree with Jean. Everyone MUST take control of their own health! Make notes, ask questions, INSIST on your doctor communicating with you. Good luck and take care of YOU!!!

Im very sorry for your loss hugs love and prayers

I am very sorry about your son. I know this must be very difficult for you. You need to take control of your illness. FIrst of all demand that the doctors sit down and explain your diagonosis. You have a right to know everything and to let them know what medication is working and what is not. Bottom line, it is all up to you. A positive attitude and so important. Some days are difficult and others are OK and even some are wonderful. Your son would want you to be happy. Keep active as long as you can. You are not by yourself. There are many of us who have had similar experiences with doctors. If you don't get the answers you want from your current doctor then change doctors. All the best to you