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As The Spouse I Often Feel Like Im Being Imprisoned
A MyCOPDTeam Member asked a question 💭

Don't misunderstand I love my husband and would do anything for him. He has severe copd and has just been put on at home hospice.
one of my biggest concerns is that he has gotten so paranoid. If I am out of site for more that a few minutes he panics. I have horses to take care of and outside work that has to be done, more so wen the weather is cool. Though I understand his panic I have to find a way to work around it. Has anyone else had this kind of issue or have any suggestions?

posted August 8, 2019
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A MyCOPDTeam Member

I understand both sides. We too have acreage and animals to care for. My husband is now doing the majority of all outdoor chores as you are .......I once did most of them. Do you have a cell phone you carry with you so he can call if he gets in trouble or panics? Years ago, before the advent of cell phones we had radios that would reach to the barn (walkie talky?)......I still have them....cheaper than cell phones.

I assume he is on oxygen? It is scary when you have trouble breathing. Do you have a system now where he can call you when you are outside if he needs you?

Do you have any help with him being on hospice? I don't know if you can manage it, but you may be able to get a sitter through a health care agency for part of the day so you can be free to leave to do the shopping or chores. Depending on your insurance, some home health service like that may be covered........just a suggestion.

We are working on trying to get our house in shape to sell in the future and downsize. Husband is having trouble keeping up with all the mowing/bushhogging that has to be done each week. He has copd too.......just is better off than I am. We have one older horse left and we he goes to horsey heaven we will definitely move to a smaller house with less land to mow.

I wish you the best!

posted August 8, 2019 (edited)
A MyCOPDTeam Member

Talk with the hospice organization about your difficulties. Many of them have resources specifically for situations like yours and if they don't, they should have ideas about where you could find help.

posted August 8, 2019
A MyCOPDTeam Member

My husband doesn't go anywhere but he's good with me going. He just stand and watch TV all day (literally). I don't know how I feel about it 🤪

posted August 28, 2019
A MyCOPDTeam Member

What about using a 2-way radio so maybe he can feel assured that u are available to help him if he needs assistance.

posted August 20, 2019
A MyCOPDTeam Member

Since he is on Hospice maybe a Hospice volunteer could come in and stay with him so you can do your chores...Do you have family that can help? Just throwing ideas out there...Good Luck....HUGS!

posted August 8, 2019

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