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On oxygen and CPAP Last PFT numbers were bad Wondering why they are taking so long to approve disability I can't work with SOB or stamina so low They just sent mail wanting to know about my headaches Really ? Who cares if my head hurts when I can't breathe? I have worked since the age of 13 and now that I can't anymore this is how I am treated It's a real slap in the face for me
The SSDI process is slower in some states than others. Even slower since Covid. No state is over 50% APPROVAL right off the bat! Your Lawyer's fees are capped to a certain amount so there's no rush… read more
I've been living with this for many years there is a lot of suffering and pain. I've become dependent for just about everything. I don't want to leave my husband but living like this is not living
@A MyCOPDTeam Member well that's great my wife is healty and takes care of me evan though I have cancer and she dont and that's a load
I am in severe stage copd. I have always been warm blooded but My hands and feet seem to be cold quit often. At times I just can't get warm. Anyone else experience this problem? What causes this?
Invest in Bambillo bedding. Bamboo cotton sheets, pillowcases, and a Bambillo undersheet topper, or a merino wool undersheet topper with electric blanket. They're very good investments!
I am a 71 years young, retired, male. Survived two strokes in 2009, multiple bouts of pneumonia, and (end of life)stage emphysema. Currently on 5L oxy, 24/7. Minimum activity will take my pulse/ox to low 80/upper 70. I have to immediately stop to recover back to mid 90. We are considering a move back to our home area in the Omaha, NE region. What challenges will I face in the change in altitude, pressure, air quality, dryness, etc.
Appreciate any comments, input.
@A MyCOPDTeam Member I’m surprised at everything you’re saying . I didn’t think portable concentrates went higher than 5 liters. My next thought is if your on that much how is it your climbing hills… read more
I have a Hill Rhohm brand seems to help but little concerned I feel like it makes me feel some SOB and more
congestion next day.However had pneumonia in January. So am wondering if Im still healing from pnuemonia or is Vest supposed to do that for a few weeks til it clears out some lung gunk.Thanks everybody.
Yes you are so right on doc answer.Thank you Jean I feel like best way to get better is keep using it ..reviews I looked at...most folks takes 6
Months to a year for full effect.I think just maybe… read more
Hi anyone, I hope all of you are feeling your best today.
Could someone let me know if there's an opportunity to find companionship or a partner, on a site specifically for people with copd.
I have it severe but still would like to meet somebody.
Hen 51 😀
Yes I would love to meet a lady on here even if it was only for friebdship rdpecially in yhe UK
Help me I walk very slow. Any walking is better than no walking and the more I walk faster I can get is not a real fast pace, but it’s better than crawling peace be with you at this time of year.
Does anyone else suffer from extreme fatigue on some days? It has been extremely cloudy and overcast here's
lately. I seem to do better with clear skies.
I don't blame you! I feel that way often but, alas, my Siamese wants to be fed and when I do feed her, I'm wide awake! Have a great day (when you get up!)
I do want to add that I appreciate this site. It's free, and we all get a lot from it. We and the people who own it. It is a godsend and probably a life saver. It could be so much better. At one time… read more
My Partner suggested some lovely excersions for next week end but in my mind I'm always thinking "What if my breathing is bad " or "I don't know how I will be feeling on that day "
Copd is a terrible disease. So very hard to deal with. I’m so glad of this site to speak plainly and say what scares us.