COPD

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How can someone with a Fev of 20 to 25% not need oxygen when people with up to 50% more lung function are having to use oxxygen 24/7

posted 5 days ago by A MyCOPDTeam User
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Hi Everyone, in order to get air in you have to get the bad air out. (that's the air that sits in the bottom of your lungs) I learned how to get the air… read more

posted 4 days ago

Replacement columns for G3 Inogen One

Bought an Inogen One G3 at a garage sale 2 years ago. Just a few months ago, there was an error that said service soon. Then it came up with a Low Oxygen error. I check the tech manual and it stated that I need to replace the 2 cylinder columns due to the sieve beds. I called Inogen to see if I ordered these and it did not fix the problem, could I return them. The customer service said no they are non-returnable. They also said because it now says low oxygen that the new… read more

posted 6 days ago by A MyCOPDTeam User
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I agree with Jean. I also think that the low O2 refers to correct amount of O2 the unit is producing. I have and still use a Everflow portable unit that… read more

posted 4 days ago

Has anyone seen Lift Pullmonary Rehab App??

I just found it and it looks like some good info.

posted 6 days ago by A MyCOPDTeam User
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I will Diane, thanks.

posted 5 days ago

How is it possible to have SOB, breathlessness and be struggling to breath and STILL have "normal" oxygen levels?

How accurate are oximeters? Whats the "normal" range?

posted 6 days ago by A MyCOPDTeam User
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MonicaL,
Happy to see you as a part of this group ! If you are asking about the accuracy of a Pulse/Oxy meter the best thing to do, in my mind, is to… read more

posted 1 day ago

Walkers/wheelchair

I'm considering using a walker. I hate this. Family are kind enough to drive me up to doors and pick me back up there but it's getting harder to get where I need to go inside buildings. I do ok shopping where they have carts to lean on but avoid other places.
Do most of you need assistance?

posted 6 days ago by A MyCOPDTeam User
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Yes. I use the ride carts in the store. It is getting harder to get errands done. Some days I feel to weak/ tired to try .Everyday I tell myself , "get… read more

posted 5 days ago

Stage of disease and treatment questions

Is anyone in the stage of their disease requiring home care, nursing home or hospice? How did you know "it was time"?

posted 7 days ago by A MyCOPDTeam User
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you just cant do the things you used to very frustrating but accept the help makes life easier but still sucks.life changing moments.

posted 6 days ago

portable oxygen

Just got a portable oxygen apparatus. Works fine. Awfully heavy if I carry the back up battery. My question is how to properly store the tubing when in use. I wrap it around (loosely) and it seems to always pinch the connecting tube to the machine itself. Another thing is that it's supposed to last 3.5 hrs. but it actually is less then 2.5 hrs. with a full battery charge.
Any ideas? Tricks?

posted 7 days ago by A MyCOPDTeam User
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The portable they gave me, which I run at "3" when walking, only gets about an hour from battery and same with backup battery. Frustrating.
Tubing gets… read more

posted 5 days ago

oxygen and CPAP

Looking for advice on where to find a CPAP mask that handles Oxygen. I use Oxygen at night and havent figured out how to use my CPAP pillow mask with the Oxygen tubes. Tried stacking them in the nostrils, not a good idea, worked for a little bit but caused a very sore nose.
i'm sure someone makes what I need, just don't know what it is called to be able to look for one.
Thanks

posted 9 days ago by A MyCOPDTeam User
view all answers (8)

There should be a feed on the C-Pap machine itself where you can hook the O2 hose. Look at the machine,m and youj should see something sticking out… read more

posted 8 days ago

Has anyone heard about Wei Lung Institute? I was wondering if anybody had any results from their treatment.

https://www.mycopdteam.com/questions/new

posted 9 days ago by A MyCOPDTeam User
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It's a scam. Not as bad as the stem cell scams, but a scam. Doesn't work. Lots of testimonials and not a shred of scientific evidence.

posted 9 days ago

Why dose my hubby ache all over

posted 11 days ago by A MyCOPDTeam User
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Depends on what kind of aches he's having: achy like the flu or muscle aches because he did too much or something else...... If you can't identify them… read more

posted 11 days ago
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