COPD

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I have been diagnosed with COPD. Respiratory spirometry was the only mode of diagnosis.

I am frustrated because I'm told by my physician that there is no use asking to see a specialist as the wait list is 'way too long. I have no details about my condition other than COPD. My only symptom is shortness of breath on exertion. I do not cough .
Any advice from anyone?

posted about 8 hours ago by A MyCOPDTeam User

Not sure if it's an example of the negative side of our health care system or what, but I understand why you would be frustrated. I read about people being out in lung… read more

posted about 8 hours ago

Does anyone know anything about the Stem-Cell replacement for COPD treatment?

posted 1 day ago by A MyCOPDTeam User
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There are no stem cell treatments for COPD that have been proven to work. The companies that offer them have lots of testimonials from people who would have you… read more

posted 1 day ago

Have you bought your own oxygen concentrater?

Insurance will be running out for my concentrater . I have two. One in the house ( continuous) and a portable. Need recommendations.

posted 1 day ago by A MyCOPDTeam User
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I just don't know enough about the machines to buy one....I want a light weight portable machine. My medicare with not pay for it, I do have the bottle oxygen now to… read more

posted about 10 hours ago

Just wondering if anyone knows where pappon, from Ontario is ?

posted 3 days ago by A MyCOPDTeam User
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Hope you get some help soon C. Take care friend !

posted 2 days ago

Dpo any of you suffer from swollen feet & periodically goes up into your calve muscles ?

My feet have been swollen for awhile now. It is not caused by circulation, according to my doctor. He said something about CO2. I am on O2 24x7 & use a v-pap ,machine..My feet get very painful & some days it hurts to walk. Some days the swelling & pain extends up my calf muscles. I am getting upset with no answers so I thought I would do the smart thing - ask you guys !. Do any of you have this problem, what to… read more

posted 3 days ago by A MyCOPDTeam User
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I have had my ankles and feet swell many times and it can be quite serious sometimes. I usually get cellulitis. It's actually a type of staph infection. My legs will… read more

posted 2 days ago

my diagnosis of copd can only be due to breathing in sugar and flour dust in the job i have worked in over 45 years,

is Flour and Sugar dust inhaled over many years a cause of industrial copd,im a non smoker

posted 4 days ago by A MyCOPDTeam User
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Certainly could have contributed. You might try a worker's Comp claim if you really believe that. There are people who develop COPD with no smoking history and no… read more

posted 4 days ago

I was recently diagnosed with bronchiestasis and I need to have a bronchieoscopy and lung washing. Haa anyone gone through this?

posted 4 days ago by A MyCOPDTeam User
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Christine have you been tested for Alpha-1? Talk with your pulmo if not, get tested ASAP. Alpha-1 is a genetic condition that leads to emphysema and sometimes liver… read more

posted 3 days ago

Has anyone here been intubated and if so did you get back to your original baseline prior to the intubation?

posted 4 days ago by A MyCOPDTeam User
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I was intubated after surgery in August 2016, I had to go to rehab to get back on my feet, I was in a wheelchair for 20 days, I came home with a walker, I am back to… read more

posted about 10 hours ago

Does anyone experience loss of appetite or have you in the past ? I seem to have bouts and wonder if its COPD or digestive. Thanks.

posted 4 days ago by A MyCOPDTeam User
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I will go for a week with no appetite and then the next week I can't get enough to eat and thsi keeps cycling. So in answer to your question I would say yes and it's… read more

posted 2 days ago
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