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Real members of MyCOPDTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Who Are You Supposed To Talk Or Go To With Concerns About Your Health To Your Family Doctor Or To Your Lung Doctor?

Who Are You Supposed To Talk Or Go To With Concerns About Your Health To Your Family Doctor Or To Your Lung Doctor?

is anybody else having/had this problem or know the answer. Ive got a few questions regarding my COPD condition and i dont know which doctor im supposed to ask. cause a few months ago i had asked my lung doctor over the phone about getting a letter/note stating the level of my condition, due to my condition if im employable or not,. you know just information like that and he stated for me to go to… read more

A MyCOPDTeam Member said:

In my experience, the Primary ("family") doctor is the one to handle requests like this. If they are unable (or unwilling to) do so you may need to seek… read more

edited, originally posted 41 minutes ago

Type Of Emphysema I Have Is Rare

Type Of Emphysema I Have Is Rare

My respirologist has told me this is a rare disease and still don’t have enough research and info on this..... I was diagnosed at 41 with emphysema and the type was shown in a cat scan...My issue is I can’t get the bad oxygen out of my lungs and oxygen drops on any exertion
. I am on oxygen, but just on exertion. At rest my oxygen levels are anywhere from 95- 98.
When I do anything is when my oxygen levels drop very quickly.... recovery is quick as soon as I sit again.....
read more

A MyCOPDTeam Member said:

Everyone with COPD has the same problem you do: getting the stale air out and dropping O2 sat levels on exertion. I think you may have Alpha-1… read more

posted about 1 hour ago

What Has Anybody Hear About The Zephyr Valves? Are They Working?

What Has Anybody Hear About The Zephyr Valves? Are They Working?

A MyCOPDTeam Member said:

Jean, question as I know nothing about this...if there is any possibility of pneumonia, isn't that more painful than the COPD exacerbations which have… read more

posted about 4 hours ago

How Do You Respond When Friends Or Family Asks, "When Will You Get Better?"

How Do You Respond When Friends Or Family Asks, "When Will You Get Better?"

A MyCOPDTeam Member said:

All my friends know that I'll never get better and now my sister has it too. I am 77 and quit smoking 16 years ago. I am on oxygen 24/7 and I have… read more

posted 34 minutes ago

Oxygen Therapy

Oxygen Therapy

Does anyone suffer from CO2 retention, My husband has been on OT for 3 years now on 4Litres but this year he started to suffer from carbon Dioxide retention. He has been in hospital 3 times now, the last time he came out he was given an NIV mask to wear at night whilst asleep. As his carer this has been a nightmare as we are up at least 3 times a night where he has to remove the mask to cough and he needs a drink of water as his mouth is so dry - even when we have added a water chamber to the… read more

A MyCOPDTeam Member said:

Talk with the provider of the NiV to be sure the machine he's using is calibrated correctly for your husband. Explain about the gas problem and the rest… read more

posted 1 day ago

🙋

🙋

My husband was recently diagnosed with COPD. He was prescribed with therapy because he coughed and had wheezing when breathing. He's much better now, but no one explained whether he should take any medication or not when his condition is stable. He used inhalers and antibiotics and he finished the therapy

A MyCOPDTeam Member said:

I think you need to get the results of his spirometry or Pulmonary Function Test so you know what you're dealing with. If his condition is very mild, it… read more

posted 1 day ago

Inhalers And Kidneys

Inhalers And Kidneys

I am currently taking Trelegy. Can anyone tell me if any of these inhalers has caused decreased kidney function?

A MyCOPDTeam Member said:

Trelegy contains an anti-muscarinic as one of the three main ingredients. Anti-muscarinics all seem to have a side effect of affecting urination; hence… read more

posted 3 days ago

Does Anyone Know Where I Can Buy A Flutter Value That Attaches To A Nebulizer?

Does Anyone Know Where I Can Buy A Flutter Value That Attaches To A Nebulizer?

A MyCOPDTeam Member said:

Try the internet to see what's available. Google "flutter valve attached to nebulizer" and see what you get.

posted 3 days ago

Looking For Information On C02 Retainers.

Looking For Information On C02 Retainers.

Hi
A few of us are C02 retainers and getting oxygen can be detremental - can someone expand on this?

Lennie

A MyCOPDTeam Member said:

My husband has that problem and he now has an NIV mask to wear at night whilst asleep, this is the only way round it as far as I know as no other… read more

posted 2 days ago
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