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I did a research post about a year or two back, @A MyCOPDTeam Member, which you can find using the search tool and using the word ZEPHYR.
At the time I checked all the posts, there was a 33% success rate where they were installed and succeeded, a 33% failure rate (where they needed to be removed), and a 33% disqualified from trying of all the folks that I could find.
@A MyCOPDTeam Member had to have hers removed
@A MyCOPDTeam Member is very happy with his
@A MyCOPDTeam Member couldn’t qualify
@A MyCOPDTeam Member was very happy with his
@A MyCOPDTeam Member got them in March and is happy
@A MyCOPDTeam Member got his installed in November 2023 and hasn’t been back on this site
@A MyCOPDTeam Member - talked about valve install and then dropped off this site.
@A MyCOPDTeam Member - denied valves. Hasn’t been back to site since 2022.
@A MyCOPDTeam Member - early days; still trying to qualify as of March 2024.
@A MyCOPDTeam Member - just started researching valves.
@A MyCOPDTeam Member - had them put in; still adjusting.
@A MyCOPDTeam Member - can’t remember but believe he got them in and then removed.
Every time you look you might get different feedback / results, but I hope this list will give you a starting point on your zephyr valve journey.
If you date your posts, it will help folks keep up to date with you. If you can’t figure out if someone is active on the site, please tag their profile name and it will take you to their wall where you can find a date showing when they were last online.
Hope this suggestion and short list helps, Saturday, 04-MAY-24
I've got them...they help my breathing quite a bit but I still require some oxygen at times...I would do it again
I have not had it done but asked my pulmonologist at UAB about it. He says they are doing them but I do not qualify as I am not sick enough. I have 45% lung capacity, am not on 02 but do use my portalable oxygen concentrator if walking much & have to when flying. My doctor said most who have it done are much sicker than I am??? Oh well i should be thankful.
It is different for everyone I think. I am feeling better each day had my breathing test on the 28 I believe and they say things look very good. More of the bad air is getting out instead of being trapped and o feel it also. I tried it for the reason being why not and I am glad I did.Take care everyone.
Hi, @A MyCOPDTeam Member:
There are many reasons why you might have to wait for zephyr valves to be considered as an option for your care choice.
The current medical powers that be prefer to install the valves only in severe cases as their medical guidelines are focused on the Hippocratic Oath guideline, “First, do no harm”. So, they want you to try medications, diet and exercise first, before choosing the valves as a “simpler” or “easier” solution. Think of it like being obese - they want you to prove you can lose weight via diet and exercise before they will ok you for the various weight reduction surgeries.
Because complications can occur even in the best of circumstances (see NIH white paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC62... ) you may be better trying diet and exercise (plus reduction or quitting smoking, if you smoke).
If you are not familiar with team member @A MyCOPDTeam Member who runs in marathons and triathelons all over the world, despite his 26% lung function. You can find him on his own website, as well as facebook via the links below:
https://www.facebook.com/copdathlete
https://m.facebook.com/russell.winwood
Russ has worked closely with is docs to learn how to exercise safely, while trying a variety of supplements and food choice changes to be able to perform at his best, despite his lung damage.
I hope this info helps. Butting out again.
Happy Monday, 06-MAY-24
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