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Copd & Bronchitis. I Feel Never Really Told Of How Condition Is Going , Let Alone Told It Was COPD ? FEV ?

Copd & Bronchitis. I Feel Never Really Told Of How Condition Is Going , Let Alone Told It Was COPD ? FEV ?

I'm really amazed how much in the dark me and some others were left and not actually told condition is not asthma it's copd Ect and nothing explained in any depth ? I'm 57 yrs young ,! If keep telling myself this I might believe it lol 😂. Not really informed of how good or bad condition is ? Or what to expect ? I have a GP that I call dr death he's very blunt who says you won't see xmas I'm never wron nice hey well I did so nearly 12 months on still here bit shocking when you had no idea how… read more

A MyCOPDTeam Member said:

You need to find a new doctor. I am blessed I have a team: one is a specialist for arthritis, one is for allergies, one is for pulmonary and my GP. The gp put me on oxygen in 2006, my lung function at that time was only 30%, my allergist helped me get it increased to 40% so I could take allergy shots, my rheumatologist prescribed Hydroxychlorquine for my RA, if you have COPD you are limited with what you can take. I have found that usually if someone has COPD it affects other areas and it becomes a balancing game trying to find medicine for something that won't adversely affect something else and then finding medicine that is covered by insurance.

posted over 5 years ago
A MyCOPDTeam Member said:

I was give out when I got out of the shower, I had to sit on my bed and rest, couldn't get air in my lungs, after 10 to 15 minutes sitting on the bed side, I can get up and finish dressing.......THEN I figured out what the problem was......I take a very hot shower !!!! the steam for the hot water in the closed in shower was taking away my breath......I was doing it to myself......next time when I took a shower I used warm water and I got out dried off got dress, and when on with the day not problem.......Its little things like this you can learn from others and not the dr or book.....Good Luck All, God Bless

posted over 5 years ago
A MyCOPDTeam Member said:

I realized by reading your post carefully that you're probably not in the US, but most likely in Great Britain. Your issues with finding a doctor who can really tell you what's going on with you are definitely different than ours here. Again, I would suggest that you try to find a doctor who is willing to answer your questions and who will work with all the different co-morbidities you present with. In your shoes, I would be asking what can I do to help myself? Are there things I can control and change that will make a difference? Once you have the answers, then you need to begin to make those changes. Doctors tend to be much more willing to be collaborative and cooperative with people they see as being invested in their own health.

The other thing you can do is educate yourself about all the various ailments you have. The COPD Foundation is a great place to get lots of good, accurate information about COPD. www.copdfoundation.org The American Diabetes Association is a good place to learn about diabetes and I'm sure there are good British sites as well. Yes, you should expect some help from your doctors, but they can't know all your questions and what you want to know unless you ask, so learn enough to ask the questions you really want answered.

I would also suggest that when you see a doctor the next time, you make a list of things you want to know. Share the list with a family member who could go with you, so that if you can't ask the question, they can. Two sets of ears always hear more than one. I hope these suggestions help.

posted over 5 years ago
A MyCOPDTeam Member said:

@ Betty butcher @A MyCOPDTeam Member @raymondMary AneeKeerThank you all it turns out I have prenious anemia to this wud explain why breathing taken dive to , been on jabs loading dose mon , wed Fri , and now folic acid pills then injections every 3 months ! It seems it distorts blood cell shape and inhibits oxygen going round your body ?
That's my lay man terms lol . What I didn't know you get misshapen blood cells if your a drinker to ? Penny dropped wondered why I kept getting asked if I drink 😳 Yes tea total with pills ect I have to take ! But now makes me think I've had this a while but it was never diagnosed I feel embarrassed that they may of thought I was a drinker and never investigated further ??
I have COPD and Bronchitis. Plus quite a few other things of late , I was so worried how breathing had taken a real nose dive and how exhausted I'd become even if sitting ! Have not been free from tests scans ect for bones chest and nerve test on legs back it seems when you do shout out loud they listen figure of speech not shouted but stood my ground when went respiratory clinic .
So fingers crossed these jabs help !
Thank you all for your help and comments bighugs thank you soo much ! I live in U.K. Not health ins it's NHS our hospitals but looks like we're on way to losing that 😢. I could not afford medi insurance .
Your all so lovely
Thank you. Xx 💕💕
It would be easier list what's not wrong at min take me vets lol .
I do use breath easy site to thanks xx

posted about 5 years ago
A MyCOPDTeam Member said:

@ ChristineRuscoe I would say your money you paid your medical insurance was a waste and would ask for it returned....seriously i would start with a new primary care doctor who doesn't treat his patients by the clock and listens to his patients and understands them... a pulmonologist would be the next new doctor. i would say this in closing, just because they have degree doesn't make them a real doctor...

posted over 5 years ago
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