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Real members of MyCOPDTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Medication.

Medication.

I have Hystistosis x and copd and emphysema and want to breath better, anybody use a medication that they think i should as my specialist for?

posted July 9, 2017
A MyCOPDTeam Member

COPD doesn't cover all lung diseases. It specifically includes chronic bronchitis, emphysema and sometimes asthma and bronchiectasis. It does not include such diseases as LAM, sarcoidosis, cystic fibrosis, pulmonary fibrosis, idiopathic pulmonary fibrosis, pulmonary hypertension, and a whole host of other diseases that are lung diseases, but definitely don't fall under the COPD umbrella. People with COPD sometimes have these other conditions as well, but it's an" and", not an "includes".

posted July 11, 2017
A MyCOPDTeam Member

Meant to say affair 500/50 ....do funny I said a affair that probably would help too lol

posted July 18, 2017
A MyCOPDTeam Member

I don't think I could live without affair 500/50

posted July 16, 2017
A MyCOPDTeam Member

I would depend on a pharmacist rather than your GP. GPs may be good, but as generalists, there are nuances they don't get. Pharmacists are specifically trained to know how meds interact with each other; GPs aren't.

posted July 12, 2017
A MyCOPDTeam Member

If you mean histocytosis X, as far as I can tell, there's no relationship between that and COD/emphysema. As for what meds you should be asking for, that's really the wrong question. The question is, what have you told your doc about all your medical issues and what does he prescribe for you and why. Once you know what specifics your doc was looking at when he prescribed these meds for you, then you have the basis for asking for something else if what he originally prescribed doesn't work. You also have to remember that even if you are prescribed meds in the same class as someone else for exactly the same symptoms and bio-markers, you could react totally differently to a different med in that class because the combinations are different.

Try what you've been given. Make sure you know what you should look for to be sure that you give them a chance to work, and if necessary, work with your doc to be sure they're not working before you dump them. Then you could try something else, but don't ask us what. We're not the experts here in meds and what thy do and why they're prescribed. Unfortunately, many of the people here don't' know why they're on the meds they're on and/or what those meds are supposed to do. You hired a doc as your medical expert. Ask him questions about the things that are his specialty.

posted July 10, 2017

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