FEV1 13%. Need Information | MyCOPDTeam

Connect with others who understand.

sign up Log in
Resources
About MyCOPDTeam
Powered By
Real members of MyCOPDTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
FEV1 13%. Need Information
A MyCOPDTeam Member asked a question 💭

Hello everyone
i just had a spirometry done 2 days ago. The numbers look serious and i am confused.I have felt severely out of breath for some time now but am not on oxygen. I don't have health insurance and have filed for disability. i stopped working Sept 2016. I have a family Dr that has prescribed me Advair 250, Proair inhaler and a combo nebulizer and that is all I use When i have a flare up he throws a pack of prednisone at me.. I feel like I need oxygen bad. I cannot do ANY physical exer… read more

posted August 11, 2017
•
View reactions
A MyCOPDTeam Member

@A MyCOPDTeam Member -- I have used an Inogen G3 for 1 1/2 years and thought it's expensive ($2.500) it's worth every penny. The company is responsible and extremely quick to act if you have a problem... Mine failed one day and the next MORNING!!! I had a new one at my door. There may be cheaper ones, and as good, but I am going to stick with Inogen. Class act!

posted August 20, 2017
A MyCOPDTeam Member

@A MyCOPDTeam Member I too feel okay most times sitting and watching TV or being on the computer. My pulmonologist had my current oxygen supplier give me an overnight oximeter that I taped onto my finger while I slept. It records your 02 levels throughout the night. My levels dropped below 87 a good part of the night and that was one of the issues causing the swelling in my ankles and feet. That was when he was justified in prescribing oxygen while I sleep. Just recently I asked about portable oxygen and he advised me that Medicare doesn't approve that so easily. It has to be well substantiated . He had me walk while measuring my 02 levels and saw how easily the levels dropped. He prescribed it and it took about 2 months before the supplier came through with Inogen G3 . I called them very often to ask "when". They would say, we have to wait until one is available ! I finally said are you waiting for someone to die so you could give me theirs? They acted highly insulted. Finally I received one; they are very expensive I know. The one I received is new. I guess they had to purchase more than they had. Bottom line is you could get your exercises in on a stationary concentrator. The tubing can be 50 feet or more. I'm going on & on again! Again, I wish you good luck & easy breathing.

posted August 19, 2017
A MyCOPDTeam Member

Tamara,
My pulmonologist told me to wear my oxygen at night because your oxygen drops a lot then. And to wear it when ever needed during the day.

posted August 19, 2017
A MyCOPDTeam Member

I know it is sooooo exhausting; I could walk 20 feet to my car and feel like I ran a marathon. Hell, I walk to the bathroom and I'm out of breath! It's a battle every day. Doing the smallest thing becomes a project requiring so many rest periods in between. When you call, impress upon them that you are in desperate need of a pulmonologist but cannot financially secure one but if they could try to expedite the process Keep in mind though, you COULD make an appointment with one and actually go and get things started. Have them bill you. After 30 days they will tell you payment is overdue. You can call and make a payment schedule but by that time you will probably will be on disability or very close and therefore they will put you on Medicare & probably Medicaid automatically. Then you can tell the doctors office to bill either of them or both. So, let's get this party started! Good Luck !

posted August 13, 2017 (edited)
A MyCOPDTeam Member

Tamara, I do hear you loud and clear! As @A MyCOPDTeam Member also said........do not push it (exercising that is) My pulmonologist walked me around hallways with an oximeter on to see how my 02 levels dropped while just walking in order substantiate the need for a portable 02 unit, first without 02 then with it. Marked difference! I have been to Pulmonary Rehab where they NEVER allow you to continue ANYTHING when 02 drops below 88 or 89. I know all too well that feeling of gasping for air and feeling like I'm going to have a heart attack. DON'T DO IT. Did Social Security give you a contact person when you submitted you disability papers? If so, (they did for me) call that contact and ask for some help to get to a specialist . They may (I daresay may) help to expedite your case. YOU HAVE NOTHING TO LOOSE BY CONTACTING THEM. I wish I could help you more; I will continue to give you the benefit of whatever experiences I have had. Just ask away!

posted August 13, 2017

Related content

View All
What Is Average Lung Capacity For COPD Sufferers On Here?
A MyCOPDTeam Member asked a question 💭
COPD Or Not?
A MyCOPDTeam Member asked a question 💭
How Is The Need For Supplemental Oxygen Assessed And Measured?
A MyCOPDTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in