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I don't know where to start. Basically, I've been on inhalers since the early 90's. Wasn't officially diagnosed with COPD until a couple of years ago. Up until that point my life pretty much remained the same. I just remember after an extensive breathing test being put on nighttime oxygen. At this point I had been a cop over 15years. I'm not sure, but the test may have been work required. I was not to the point where I felt I had anything wrong with me. I quit smoking in October of 2016. It… read more
Barry, if you did pulmonary rehab, they apparently didn't teach you the most important lesson: you can't stop exercising and expect any of the benefit you got from it to last. While I'm sure there were other things involved in you getting to the point you're at not, I'm equally sure that it might not be so bad if you had kept up the daily exercise. Exercise, diet, proper nutrition and good meds, including O2 (and I'm pretty sure you'll need it for exercise if for nothing else) can make a huge difference. Unless there's something else going on with you that you haven't shared, like some other condition that's influencing the hospice decision, talk with that good pulmonologist of yours and see what he thinks. Absent other conditions, he might tell you to forget hospice and give diet, exercise, nutrition and meds a good chance.
I would say YES...go for it! We know there is no cure for COPD but diet and excercise can help and prevent further progression.
As for Hospice,,,I was a Hospice caretaker for 38 years and Hospice does not mean you are going to die soon. Usually they keep you on the program for a certain length of time and re-evaluate to see if stay on the program or are well enough to get off....they have certain criteria to follow. I have had many people taken off Hospice.
That being said you show them...you can do this!
That's right I don't want hospice to come out for me rehalp will help you to improve yourself try that then see how you feel wish you luck. Happy breathing keep on keeping on
@A MyCOPDTeam Member thanks so much for reminding me what life is all about!
You need a good pulmonologist, first of all and a bout of Pulmonary Rehab so you can learn about COPD. I don't think that Pulmonary Rehab is compatible with hospice, but you might look at palliative care; that seems to be a little less rigid regarding what you can do. Diet, exercise and proper meds can make a huge difference in how people function with COPD. The fact that you're where you are now would make me think seriously about finding a good pulmonologist, and going for a complete diagnostic and treatment oriented workup. Unless there's a lot you're not telling us, I'd say your care up to this point has been really poor.
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