Does anyone have an actual link to a program of home exercise for someone with gold stage 3 Emphysema i.e. myself
Ben, the Cleveland Clinic, and any other outfit that provides on-line guidance for just about anything, will be very cautious and specifically designed to safeguard them from any liability that someone could say, "Well, the Cleveland Clinic said I could do......." and they have a heart attack or something and sue the Clinic. I always take the kind of thing they say and measure it against my reality. I'm not likely to overdo anything; I'm smart and I know when I need to back off something. I also know that if I don't push myself I'm never going to make any progress, and progress is really important in COPD exercising. Most of us who are serious about exercising knock ourselves out in our formal exercise programs because that allows us to do the fun things in life with less effort. So do add a fairly hefty measure of salt to their cautious approach.
It's kind of like saying to someone with COPD, "If you can't talk and walk at the same time, you're working too hard." The real statement is, "if you can walk and talk in anything less than a fairly hard gasp of more than three words at a time, you're not working hard enough." The point is that because of our compromised lung function, to get it really working efficiently, we have to work hard and that involves less air for things like talking. If we were normal folks with no lung disease, that statement about walking and talking would be correct, but we're not. So measure their caution against reality. Push yourself to see how far you can go. You'll be astonished at what you really can do.
You can google home exercise for people with COPD and get a number of programs. I'd suggest that you talk with your doc about pulmonary rehab if you haven't done that already. That's a good way to learn about exercise, figure out how you can recover from getting yourself really sob and learn to push yourself slowly and steadily toward improvement. If it's a good program, you'll also learn a lot about COPD in general.
Whether you do PR or not, the first step is checking with your doc to be sure there's no reason you shouldn't be exercising or if there are limitations or restrictions that you should be aware of. You want to be sure you include aerobic exercise and weight/resistance exercises for upper, lower and core muscle groups. The one thing you'll need is to get an oximeter so you can keep track of your O2 saturation levels. If they go below 88 when you're exercising, you need to talk with your doc about supplemental O2 for exercise. If your sats go down when you exercise you can turn the O2 up, but if they aren't going down and you're still sob, don't turn it up; it won't do any good and could do harm. You can keep going for as long as you can stand it and you won;t do any harm.
One of the BIG mistakes people with COPD always make is they start out their aerobic exercise at what they think is a normal pace, and run out of gas in the first minute or two. So start really slow; so slow that you're sure the turtle would pass you in less than 10 seconds. Because the point of the exercise is to increase your endurance and stamina, so you're talking about time and the point is to increase the time between stops to catch your breath. You start out and walk as long as you can without stopping to catch your breath. Note how long you go, and do that again and again until you've done a full 30 minutes. Do the same thing for the next three or four days. Then add some time to how long you walk before you stop. Keep adding time until you can do 30 minutes without stopping. Then you can add speed, time or distance.
Keep that in mind and you'll do fine. It will make a HUGE difference.
Thanks.Found lots. Also found this one as a safe guide