If so, I would like to talk with you.
I am. Been doing the prolastin since 2012. Feel free to reach out anytime.
Thanks Jake, very helpful!
Hi Lee77
I don't know that the line from Alpha-1 to COPD is as strait as often described. While my Google does say that Alpha-1 can predispose one to Emphysema, so can other physical and… read more
Also the testing is not allways accurate for Alpha1 so make sure you test at least twice from different providers.
I got really excited when I was invited to attend a COPD clinic at local surgery, as I think care has been very ad-hoc (when I was diagnosed in 2009 my physio said "I have known people survive 10 years with this condition"). Today when I went to the clinic the first thing the nurse said to me was "who told you you have COPD, you have Bronchietasis that is not COPD. I told her the specialist who diagnosed it and did CT scan told me and showed me the XRays and damage to my lungs!!!! I asked her… read more
I feel the same I'm 55 Carl for ins paycheck to pay check caring for a 7 year old can't get off work and when I do go to Dr for breathing they wanna remind me of my female check ups now I need blood… read more
Hi, I was diagnosed with COPD (chronic bronchitis), but after over 4 years of treatment, I was told it wasn't COPD and it was chronic asthma and another underlying lung desease, but can not tel me what it is! I have had bronchitis 3 times and struggle to breath most days, with very little help or reasoning. Has anyone else had this occurs? And if so, what has been the outcome? I am thinking it is still COPD just because nothing else seems to fit. Thank you.
I was told I have Mac Diease
My mum had copd, I was diagnosed a few years back and now my brother has just been diagnosed with it. If anyone knows if it is hereditary and if there is a test that can be done to find out could you let me know please. Could I of passed this on to my children
I've just got bloods back was told it was antitypsin I'm going to see my Dr tomorrow to find out more .It is heritory genetics and can lead to c.o.p.st mother died at 58 with emphasemia so did get… read more
Want to remind others that there is a Test that tells you if your COPD is genetic - a Alpha 1 Antitrypsin Deficiency - - There is a blood test that many aren't informed about. Might provide your children with insight - and possibly a different treatment for you
Much appreciated for the good information
Does the disease progress any differently in smokers and non-smokers? The first bit of advice given to those afflicted with emphysema is to stop smoking - well what is the advice if one doesn't smoke?
what is alpha1
I ask this question to save people from being misdiagnosed.
Was just diagnosed this month and am very blown away about it.