Does anyone have information (pros and cons) regarding Zephyr Valves? I had an initial consultation in late December and will be begin testing in early May to see if I qualify.
The olegraymare, the evaluation procedures vary somewhat by site and how they view each of the components also varies by site. You'll be better off asking the site you want to explore what their procedure is and what weight they give each of the components. There's a FB page called Valves for Friends which has been up since 2019 and is filled with posts by people who've had the procedure, mostly positive. Negative posts aren't likely here, so take what you read with a grain of salt.
I know there's a lot of conflicting information, and you have to determine for yourself what's solid and objective versus what's not. Information from sites that participated in the clinical trials, like Temple and UPMC is usually very objective.
@A MyCOPDTeam Member can you explain the complicated procedures, that would be very helpful.
It would also be helpful to provide reliable sources other than the 3 letter ones to back up what I read as discouraging.
It is appropriate when making such statements that several articles/statistics are included for the reader to further research. As you know the articles would of course be unbiased so the reader can research tons of information.
Some of our medication has pneumonia as a side effect
try alternate browsers and compare info.
Ask the questions people! and follow the $.
read past the head lines,.......you might find something
nothing is guaranteed, there are risks,there's good and bad outcomes, sounds like life.
I appreciate your time, I'm looking forward to your response.
If you qualify for the procedure (which is complicated in and of itself), the chances of the procedure having really good outcomes is still not guaranteed. Some people do have really good outcomes, some have ok outcomes and some have very poor outcomes, cough out the valves or have them removed because they don't work. The worst side-effects are collapsed lungs and pneumonia. These are relatively common, but most people recover from them just fine, given time. There's a fair amount of risk and not a big chance for a really good outcome: worth it to some and not to others. Big choices!
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