Does Anyone Have Experience With The Lung Volume Reduction Procedures? | MyCOPDTeam

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Does Anyone Have Experience With The Lung Volume Reduction Procedures?
A MyCOPDTeam Member asked a question 💭

Does anyone have information on the pros and cons of the Lung Reduction Procedures? That is, Valves vs Surgically Removing Damaged lung lobes. I would like to add people to my Team that have had the Zephry Valves placed in them for lung reduction.

posted January 4, 2023 (edited)
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A MyCOPDTeam Member

I haven't heard of the valve procedure but had the lower rt lobe of my lung removed due to bullous but that was 15 years ago and the only other invasive procedure was when the Dr put a tube in my rt lung as it had collasped and inflated it with some type of powder to glue the lung to my ribs ,that was about 8 years ago and still doing good although I am on oxygen but exercise on my treadmill used to get out on my scooter until it was no longer usable now I'm pretty depressed as the scooter really calmed me down from my high anxiety but I am grateful as I have outlived the time given me by doctors and don't getting any lung infections now so all in all things are good and hopefully I will one day have a mobility scooter again, :) peace out folks!

posted January 4, 2023 (edited)
A MyCOPDTeam Member

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC26... This is the link to the NIH review of Lung Volume Reduction Surgery. Go to www.pulmonx.com to get the best information on the valves. Mixed reviews on both. While we know a lot more than we did when the NIH study was done, we still aren't able to identify with precision who will do well with the valves and who won't.

posted January 7, 2023
A MyCOPDTeam Member

I was first diagnosed with COPD 10 years ago. Now 75 and still struggling but I don't quit. I was tested (to the tune of nearly 10K) only to be declined. My pulmonologist prescribed a Hilll Rom Life 2000 and I am very grateful to him for it. Since that time I have avidly searched for folks who have had the valves and the results, good-bad-indiferent. There is very little material on the LVR procedue, though. My understanding is that it is a true "Operation" with anesthesia and recovery time. You appear to be young (both of you) and that is certainl in your favor but I would consider making haste slowly. I wasn't aware that the valves were placed in preparation for LVR. I have found the Life 2000 to be helpful and I feel as though I'm breathing more deeply, if that helps.

Good luck with your decision and it would be great if you keep us in the loop!

posted January 7, 2023
A MyCOPDTeam Member

I qualified for valves they went the day of procedure, did final test and said I had collateral leakage, fissures so valves would not work
I then saw a surgeon for over and was denied because I had no clear areas. The idea is to get rid of bad sections so good sections expand and work better

posted January 11, 2023 (edited)
A MyCOPDTeam Member

Plus 9n oxygen 24 and 7 ....I am grateful!

posted January 11, 2023

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