Has Anyone Gone Through The Process Of Trying To Get On The List For A Double Long Transplant? | MyCOPDTeam

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Has Anyone Gone Through The Process Of Trying To Get On The List For A Double Long Transplant?
A MyCOPDTeam Member asked a question 💭

I am on that journey now, still not sure and still have a lot of questions. I am at the first stage right now. Just was hoping someone has a insight on this life changing decision.

posted June 24, 2023
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A MyCOPDTeam Member

If you have a chance and the transplant center accepts you for evaluation, I would encourage you to be evaluated. There are lots of reasons they might not want to do it, but at least you'll know whether or not they think you'd be a good candidate. And getting on the list doesn't mean you have to accept a set of lungs if they were offered. You can always say no.

posted June 24, 2023
A MyCOPDTeam Member

Definitely go for the evaluation. It's probably he most thorough evaluation of you and your physical condition you'll ever have. Their business is answering questions, so be sure to ask lots, that's part of their evaluation. By the time you're done, you'll know enough that you can make a good decision because you'll have all the information. Transplant isn't for everyone and it can be pretty scary, but the people I know who've had one didn't regret it in the least, even if there wasn't the outcome they'd hoped for, and said they'd do it again in a heartbeat. Others wouldn't even consider it. Either choice is fine: it's YOURS and no one else's.

posted June 25, 2023
A MyCOPDTeam Member

Thanks jean , I am only 63, unfortunately because of my profession in the 80s I worked around numerous chemicals plus smoked. So I was diagnosed at 40, and yes I still have alot of questions and still may say no. I will keep my journey posted, hoping it will help others.

posted June 25, 2023
A MyCOPDTeam Member

No - at 74 I don't feel I should take the place of anyone younger.

posted June 24, 2023 (edited)

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