How Bad Is Bad To Be On Oxygen, | MyCOPDTeam

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How Bad Is Bad To Be On Oxygen,
A MyCOPDTeam Member asked a question 💭

I have recently missed work and on steroids and antibiotics for my COPD flare up, it has been a couple weeks but only feeling a little better. I get winded and start coughing while walking, or when anxious. Has anyone have any advice how to proceed?

posted November 9, 2023
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Using Oxygen for COPD Read Article...
A MyCOPDTeam Member

My PCP ordered me a SPO2 monitor for a weekend to see how low my o2 levels were while sleeping... they dipped below 88% a couple of times during the night. I didn't need a CPAP machine, but he suggested I start using oxygen therapy when short of breath (SOB). I was hesitant but got the oxygen systems in my home to have available.
Well, it wasn't long before I made a great discovery... oxygen good, SOB bad!
COPD is progressive... I was first diagnosed in 2012. Walked almost every day 2-3 miles for several years after... now I can only make it for about 20 minutes at a slow pace, without oxygen... or longer carrying my portable oxygen concentrator, or c size tank.
The hard part is accepting the transitions... Pulmonary and Physical Therapy help if you can get it... 🙂

posted November 9, 2023
A MyCOPDTeam Member

I've been on oxygen since the year 2000. I have 3 portables and 2 concentrators for 2 different homes one in Illinois and one in Florida to get out of the cold for a few months. Two of the portables I personally purchased and finally have one from Medicare, The 2 concentrators are also from Medicare. When I travel anyplace other than home oxygen supplier makes arrangements to deliver concentrator to my location. I am on #3 setting and I get out of breath whenever walking or exerting myself. I'm 82 now still have a business and still drive. I have discovered that I just can't walk and carry my portable oxygen as it takes my breath away so several years ago I bought a 3 wheel walker and hang my portable oxygen bag over the handle bar or I can put it in a basket that comes with the walker but it's easier for me to put over the handle of the walker which takes less breath to do. I found the bag on line just by googling "holders or bags for portable oxygen" or "totes to hold portable oxygen". I only have 44% lung capacity but manage ok and keep up my 2 houses and fortunately can work mostly from home with having excellent employees. I used to end up in hospital 2 or 3 times a year but I've learned to always have antibiotics and prednisone on hand and lung doctors have been cooperative about my always having a supply and this past year was the first time ever didn't have a hospital stay or have to visit a care center. I feel this is another key to successfully living with COPD and oxygen. I hope you can convince yourself it's better to be alive with limitations instead of the alternative.. It's definitely worth the struggle and worth the fight.

posted November 12, 2023
A MyCOPDTeam Member

You could get additional batteries, but then you have to carry them. You might look at wheeled containers for the equipment. I suggest a four wheel computer case or something similar rather than something you have to drag behind you; I find them easier to manage. The case often acts as a crowd parter if you're someplace with lots of people.

posted November 10, 2023
A MyCOPDTeam Member

I've been on oxygen for about 5 years now. Best advice I can give anyone is to keep moving! It will keep you from getting worst. I really don't find myself getting short of breath, but I found myself getting exhausted. So if your going to be doing something more active than normal up your litter a bit, normal I use 2 litter's a day if I'm being more active I'll up it to 3 (keep in mind if your on a portable keep an eye on your time. The biggest problem I have with oxygen is traveling. I'd be happy just to be able to take a bus to see a show but I've called a tour group and was told they have no access for me to charge my unit, any suggestions?

posted November 9, 2023
A MyCOPDTeam Member

Good for you Nancy! It's important for us to do whatever it takes to to keep us going.

posted November 15, 2023

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