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A MyCOPDTeam Member asked a question 💭
West Des Moines, IA

Some of you know that I am on the American Thoracic Society’s Public Advisory Roundtable Council, representing EFFORTS and COPD. As part of the activities, PAR and ATS sponsor a week during which each of the member disease groups can “showcase” their lung disease. COPD’s week is Nov. 8 – 15. As part of our week, we’ve scheduled Dr. Robert Sandhaus from National Jewish to do a webinar on the Future of COPD Treatment. Dr. Sandhaus will discuss current research that will impact treatment for… read more

November 3, 2015
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A MyCOPDTeam Member

The webinar is not until next Wednesday. You can register using the link I posted. In my opinion, stem cell treatment for COPD is so much snake oil. There's no scientific or clinical evidence that the therapy as given now actually makes any difference in any measure that means something, such as : changes in spirometry or PFT results, increases in 6 minute walk results, fewer exacerbations or any other changes that really show improvement.

November 5, 2015
A MyCOPDTeam Member

I agree with him! Unfortunately, most of it is offered in clinics and doesn't even purport to be a clinical trial. In my opinion, you should never pay for anything in a legitimate clinic trial; in fact in a legitimate trial, lots of times they pay you, or at least reimburse you for mileage and expenses if not actually pay you cash money. In addition, all of the stem cell research that's registered at clinicaltrials.gov are to determine whether the procedure is safe in humans; that's all.

November 7, 2015
A MyCOPDTeam Member

@A MyCOPDTeam Member, My pulmonologist said exactly what you said about Stem Cell Research for COPD. He also said to never pay to be in any such study. He actually called it a "scam".

November 5, 2015
A MyCOPDTeam Member

Sounds great, wish it were sooner.

January 18, 2016
A MyCOPDTeam Member

It was very interesting and I did learn quite a bit from it. We are lucky to have Jean .
Have a good day and breathe easy .

November 13, 2015

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