First, @A MyCOPDTeam Member, accept that not everything on the internet is accurate.

Next, type in “Asthma end stage” and you will see it’s always COPD.

I came to COPD via asthma caused by a birth defect, and had my first surgery at 6 months old.

I tell you all that because they never expected me to live as long as I have (60 years at this point). I was sick all the time, at least 4 times a year, and things got much better for me when I relocated from MA to CA, enjoying a much more stable and predictable quality of weather, and reducing much of the stress in my life.

You have made it to 54 years of age despite an asthma you never knew you had, never mind that you needed to control it.

Please know that you managed to survive without any attention or regular hospitalizations for your underlying asthma, so now is not the time to panic.

YOU are your best expert for what’s working, or not, with your body. Your best bet is to keep active, ask for pulmonary rehab to help you figure how to exercise to your best ability, gently and regularly, so that you can continue to do your best to feel your best.

Listen to what your pulmonologist says. Get your pulmonary function test results, compare the PFT results over time, and figure out what your triggers may be so that you can avoid them. Note: not everyone has the same triggers, so this is going to be a trial and error period while you figure out what helps you feel your best, despite any weather variations. Hugs to you.

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A MyCOPDT...

I suggest you look at www.copdfoundation.org. The website has some of the best information available and the Foundation is actually doing research on the Asthma/COPD overlap. I think if you go there and read the material in the 'Learn More" tab and look at the research being conducted under "Research" you may find people with whom you can talk. You can learn a whole lot more, and this website is one of the most reliable. Most of the articles are either written by docs and researchers or vetted by them. You'll probably find some of the same names of the people who wrote the articles you are reading. Actually reading the research is a great way to learn what people are thinking, and will give you a clue as to how complicated the issues are and how much we know and don't know.

As for the prognosis part, since I don't have the syndrome, it may be that the prognosis is not as good as it is for just COPD or just asthma. I'd suggest you look at the major things that have worked for people with COPD (since you come from the asthma world, I assume you know what best practices for asthma patients are). If there are things you're not doing, like daily exercise and weight control, those are things you could do to improve your situation.

Thanks

Hi, @A MyCOPDTeam Member - you need to look back among the prior posts / comments. In a nutshell, ACOS is asthma / COPD together, where the individual comes to COPD via asthma.

Hope that helps.

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A MyCOPDT...

Question what is ACOS..