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Hope you get some help soon C. Take care friend !
I live alone and am finding what little info on medical alert equip could be very helpful, do any of you have one of these systems? If supply the name and what they cover. Have you had to use yours and what kind of response you received. Any info would be helpful-- Have a good day
I had the alarm pendant it was up to the council if you could have it but you had to be on benefits and have a home phone get in touch with them
Last night I took my 2 dogs out to go potty. I've been very careful to do early in the morning and after dark. This week has been bad with the humidity here in Arkansas. I didn't know it had rained, but I was outside no more than a couple of minutes and I got hit hard with the type of nausea that you can't move. I weigh less than I ever have, I'm 5'3, and 2 months ago I weighed 95 lbs. I went back to the dr on Friday and I have put on 9 lbs. And I worked very hard to do that. But last night on… read more
I may have told you about the support group and might have given you the wrong number. We have support call in another group I am in on Mon and Thurs nights eastern time if your interested. The number… read more
hi guys "n" gals
i have several heath issues which determine my sleep patterns, but what would you say is the best position to sleep in to awake somewhat refreshed in the morning. with sufficient air in the lungs to take your first unsteady step into the day.
answers on a postcard lol
cheers
guys
I have always slept on my left side. Due to how I lay in a curled position, I now have severe neck problems which have led to headaches, then nausea and even dizziness. Everyone is different. I did… read more
Actually my cholesterol is great - my exercise is less then it was but its not gone - I start pulmonary rehab soon as well,
My doctor said that my copd was very bad for someone my age, so he took some blood test and said that I have (Alpha-1 antitrypsin deficiency) The way he explained it was that I do not have whatever it is in your body that produces enzymes. So I have no enzymes to fight off anything and that is also very hard on my lungs and can also damage the liver. So he is recommending that I take this infusion (shot) once a week for the rest of my life. The name of the infusion is (Prolastin), has anyone… read more
I have now been on Prolastin C weekly infusions for over a year and now my insurance is refusing to pay for it. They are saying that it is not the preferred drug..Aralast is and wanting me to switch… read more
I am Alpha-1 ZZ diagnosed and would like to know if anyone else has been prescribed augmentation therapy once a week. If so, how long have you been doing this,
and have you gotten positive results? Any negative side effects?
I'm recently diagnosed and getting prolastin weekly. I've only had 4 infusions so far, so I haven't noticed any change yet. A nurse comes to my house each week, and does a great job with my wiggly… read more
Not really a Question..But in researching the Alpha 1 issue I learned about this site and thought I would share if any of you want to participate in this study and find out if you have or do not have a deficiency?
http://www.alpha1.org/Newly-Diagnosed/Learning-...
The test is free but does involve becoming part of a study about Alpha 1
It also has paid studies.Knowledge is meant to be shared.
Yes, I know this is a progressive disease and I'm trying to put off being dependent on an inhaler or something to keep me alive. So far it's working, but I don't know how much longer it will be… read more
I'm on a c pac machine of a night. And have oxygen 24/7. Unless I go anywhere then I wear oxygen tanks. My question is what is trilogy machine and what does it do.
Not an answer, but another question. Can you give any suggestions for air leaks around the mask? Love my ventilator and has helped a lot for sob. Seems every time I move it causes air leak on mask… read more