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On top of severe COPD I also have severe emphysema…. It hurts to even eat more than a few bites of food, I’m on antibiotics, O2 24/7, set on 3-4, Bpap during the night , nebulizer every 6 hours, steroids, anti-anxiety meds, my weight is now at 88 lbs……. It feels like a belt is tightening around my waist (due to the emphysema)
@A MyCOPDTeam Member I am so happy you are getting the help you need and hope you are able to feel well and have support you need to get through this difficult time.
Good morning Alice,
I mentioned to my primary doctor about hospice and she suggested that it was time to at least speak with them. By the end of the day I was approved, meds delivered, … nurse, charge nurse, social worker, minister, dietitian and aa few others had come to my house and they wanted to know what I wanted and needed to just be comfortable and not be in pain…. My primary had told me a couple months ago that I was terminal, now I’m just not in so much pain
What you're carrying right now is incredibly heavy — physically, emotionally, and in every other way. The symptoms you're describing, the difficulty eating, the constant tightening sensation, the weight loss, and the full load of treatments you're managing, all point to a very advanced stage of COPD. That takes real Show Full Answer
@A MyCOPDTeam Member talk with the hospice and find out what they offer. If it's not time for you now maybe they can help with other resources that could you now.
@A MyCOPDTeam Member, I am happy for you to have a care team, it must have been lonely to be by yourself an having to make the call. I have my affairs in order : DNR, will, wishes and final decisions all in a marked folder so I won't be asked to be but on a resperator or incubated.
My heart akes for you, I hope your team is compassionate Ask for what you want or need to feel ready to let go and be at peace.
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