I have always been an extremely busy person, now I never know how I am going to feel when I wake up, every day is different. For a few years I felt I was so unreliable, now I realise its the disease that is unreliable. I have started doing just one thing a day, if its wash day, then that is my main task for the day. If I need to go out, then I make sure that I don't overdo it around the home. While still making sure that you get your exercise in, even if its gentle, you need to be kind to yourself

Whenever I am invited anywhere I have to play it by ear. My anxiety starts right away. Are there stairs, do I have to walk far, is there handicap parking. The list goes on. And that happens when I'm not even sure I'm going. It's ridiculous....

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I totally understand. I'm lucky most of my friends understand when I say I'm having a bad air day when I tell them. But they don't get some times like I live on the coast and friends don't understand why I can't go to bon fires on the beach any more. even after I told them the smoke literally hurts my lungs. I think we just need to be patient with our friends and family.

same here shirley ,like a zombie in morning .then when you do any housework .you,re tired for rest of day. reason our oxygen levels go like they do is because our lungs are that bad ,they can,t make oxygen go round our body like they use to do .my surgeon told me ,our lungs are like an elastic band .when we breath in .the band streachters out,then shrinks back when blowing out. but he told me my lungs was like an old elastic band that was so big it had lost all its elasticity and can,t push the air out of my lungs, hence no oxygen. when my surgeon told me this ,i understood it better