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About MyCOPDTeam
Real members of MyCOPDTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Has Everyone Been?

How Has Everyone Been?

How is everyone been doing? I have been away from here for quite a while. I hope everyone is hanging tough. I am doing pretty well since I had surgery. Feels good to feel better. I did go up to Houston to Methodist Hospital. I had lung reduction surgery. It's no joke! Yet, here I am and I give all the glory to God and the best doctors in the world.

7 months ago
A MyCOPDTeam Member

Hi 👋🏼 there @A MyCOPDTeam Member! I was scheduled to do the Zephyr Valves on 2/16 but my co2 levels were to high, but there may still be some light at the end of the tunnel. I will be conferring with one of the valve team Doctors next week. He said he thinks I have a good chance to go forward with the procedure soon. If you would like to look into doing the Zephyr Valves, you can Google Pulmonx.com all the information you’ll need is there, including numerous reviews from folks who have done it. I suggest you bring it up with your Pulmonologist about it. If they don’t do it where your at, you can find someplace close through Pulmonx.com you will probably need a referral from your Pulmonologist. I hope this has been of some help for you!? Have a breathe easy evening my friend. ✨God Bless 🙏🏼🙌🏼♥️✝️

7 months ago
A MyCOPDTeam Member

Good evening to you @A MyCOPDTeam Member. I think you may still have a good chance for the Zephyr Valves Procedure. You’ll be happy to know it’s not an operation! No cutting / incisions apply. I encourage you to Google Pulmonx.com then you will have a much better idea what’s involved here. It is intended for us folks with bad breathing, with basically no age limits either! There are many Doctors and or Pulmonologist who aren’t familiar with this fairly new “procedure” check it out Angie! I’m sure you’ll be glad you did. The team at Pulmonx.com will direct you to the closest place to you where it’s done. I’ll have you in my prayers my friend. Please keep us updated. Have a peaceful, restful, easy breathing night. God Bless You and Yours... 🙏🏼🙌🏼♥️✝️

7 months ago
A MyCOPDTeam Member

When you have LVRS (lung Volume Reduction Surgery), they take out the upper lobes. They only do this when they can tell for sure that the upper lobes are way more diseased than the lower lobes. What happens is that when the upper lobes are removed, the lower lobes move up in the chest cavity and reduce any pressure on the diaphragm. As long as you don't continue to have pneumonias or other exacerbations that will do further damage to the lungs, the lower lobes should not become any more diseased than they already are. They will respond to advances in age, but should not become more diseased. In patients where the surgery was successful, some had really great results and saw good improvement in all their symptoms. They still have COPD, but they do a lot better.

The valves, vents, coils, steam and glue that have been trialed were all designed to achieve what the LVRS accomplished without any cutting. All appliances are placed in the upper lobes. In some patients the work has gone well, the appliance used cut off the diseased portion of the lung and reduced the space that lobe was taking up. In other patients it doesn't work so well. We're still learning who are good candidates for the Zephyr valves who's not.

Hope this explanation helps.......

7 months ago
A MyCOPDTeam Member

Do you know what the label of your COPD is, @A MyCOPDTeam Member? Right now, doing an informal survey of members of this site who have had it done, they have about a 33% success rate, and do put them in people who seem to fit the criteria, yet later have them removed because they didn’t help their version of our shared disease.

*** Not a medical expert or any kind of medical professional *** but I refuse to take a simple “no” for a final answer.

If you haven’t dug into the “no” response with your doc, maybe you can tag him to try and understand the “why” behind his opinion for why he feels you’re a “no”.

Plus, please be sure to talk to a pulmonologist or respiratory consultant to get a second opinion, if your doc is a general practitioner and not a COPD specialist.

Good luck.

6 months ago
A MyCOPDTeam Member

Google “zephyr” on the site’s search feature, @A MyCOPDTeam Member, and you should find a post I did linking a number of folks and their reported outcome within the last year.

Off the top of my head, @A MyCOPDTeam Member just had it done. Good luck.

7 months ago

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