I do want to add that I appreciate this site. It's free, and we all get a lot from it. We and the people who own it. It is a godsend and probably a life saver. It could be so much better. At one time… read more
Machine delivers warm and humidifier air under pressure via cannula.
Hello folks
I heard about the Beast (as I lovingly call it) from the head RT at Pulmonary Rehab. Mentioned it to my pulmonary doc who immediately commented that it would help me. I could ask him why… read more
I'm trying to decide what I want in my Advance Directives and whether or not I want to mention the intubation procedure. I know several people have had it and say that it's saved their lives. So I'm wondering if you would do it again. Thanks in advance
@A MyCOPDTeam Member, this may be an aside, but we're told the British Royalty practice holistic medicine. Maybe that's why they live into their 90s
And I've certainly seen where a medication… read more
I am having trouble eating I can’t eat nothing seems every time I look at food it makes me think I’m gonna throw up if anyone else having this problem and if so, what are you doing about it because my doctor can’t seem to come up with anything for me they just keep telling me I need to gain weight well I would if I could if I could eat anyone has an answer to this problem please let me know. Thank you in advance, Teresa.
Gastric, heart or Diabetes issues aside, you will definitely gain weight if you eat all the WRONG things! 😂
My Doc eventually put me on the low-dose Prednisone routine, and yes that was 30 pounds… read more
What are the duty’s and or purpose’s of an Ambassador on this group site? How do they come about, and who are they? 👥
About a month or so ago there was a question on here from Sharona! I couldn't believe that one. I happened to write to her frequently so I knew that she had passed away nearly 5 years ago! Yikes… read more
Hello Elaine
I use a Philips Mini Portable Oxygen Concentrator (1.5 ltrs pm to 5ltrs pm) with capacity for 2hrs and 4 hrs battery capacity running time at 3litres per minute on pulse rate. I use it… read more
How accurate are oximeters? Whats the "normal" range?
Great I will get some tomarrow.
Help me I walk very slow. Any walking is better than no walking and the more I walk faster I can get is not a real fast pace, but it’s better than crawling peace be with you at this time of year.
38 yr old female. Non smoker. SOB started after renovating a home and being exposed to black mold and chemicals on November 2022. SOB has stopped now. I’m breathing normal and exercising again. Outside of the anxiety of possibly having mild emphysema I feel fine. My nurse informed me that it looks like I have mild emphysema based on Ct scan but this was prior to receiving my PFT results. Im currently waiting on a consultation with pulmonologist to understand what these PFt and CT scan all… read more
Update 9/29/23
I followed up with a pulmonologist. I was told I do not have COPD nor emphysema back in May of this year. I felt it was important to share this update since I’m aware of the impact of… read more
It’s not actually me that has copd. It’s my 76 year old father. I joined this website for him as he is not very good with technology. I’m very heartbroken to see him struggling and I’m so much pain. The copd is progressing very quickly- a lot quicker than I expected... we are talking a COMPLETE change from November of last year. He is now on oxygen full time, (wasn’t on it at all prior) he can’t barely feed himself without having major breathing issues, his days of walking are long gone, can’t… read more
I turn 83 ¥ears old December 22. Have been on oxygen 10-12 years. Diagnosed with copd 12 years ago and went on oxygen at 3LPM night time only. Shortly thereafter went on oxygen 24-7. Then i was… read more